Research study opportunities

Find the right study for you

Raremark helps patients and families make informed choices about care. We partner with the pharmaceutical industry, helping companies develop new drugs with patients in mind.

Studies currently recruiting

ATLAS study in hemophilia A/B

Study type: Open label

Status: Active

  • study only suitable for males
  • 12+
    years
  • Open label
  • 9 months
Sponsored

This study is investigating if the study drug can reduce the number of bleeds people with severe hemophilia A or B experience.

This study is recruiting in the United States and the United Kingdom . Please select your country below to learn more.

UK US

Studies no longer recruiting

Sickle cell clinical trial experience survey

Study type: Observational

Status: No longer recruiting

  • study suitable for males and females
  • 18+
    years
  • 10 mins to complete
  • Online survey

This survey is designed to help medical researchers better understand the clinical trial experience from the perspective of patients.

We have closed recruitment for this study, but please join to receive sickle cell updates from Raremark and to hear about future research opportunities.

Sickle cell clinical research study - ACZ885

Study type: Interventional

Status: No longer recruiting

  • study suitable for males and females
  • 8-20
    years
  • Placebo controlled
  • 48
    weeks
Sponsored

This study investigates whether an investigational medicine reduces pain experienced by people with sickle cell anemia.

We have closed recruitment for this study, but please join to receive sickle cell updates from Raremark and to hear about future research opportunities.

Hemophilia A clinical research study (verITI-8)

Study type: Interventional

Status: No longer recruiting

  • study suitable for males only
  • Any
    age
  • No placebos
  • Up to 48
    weeks
Sponsored

This study is for males of any age with severe haemophilia A who have developed inhibitors (antibodies) as an immune response against factor VIII.

We have closed recruitment for this study, but please join to receive hemophilia updates from Raremark and to hear about future research opportunities.

Pouchitis patient experience study

Study type: Observational (Natural History)

Status: No longer recruiting

  • study suitable for males and females
  • 18+
    years
  • 3 surveys
    over 6 months
  • Up to
    $150
Sponsored

Raremark wants to learn more about the impact of pouchitis on patients’ day-to-day lives, including: their ability to work or study, physical and emotional aspects, and their relationships with others.

We have closed recruitment for this study, but please join to receive pouchitis updates from Raremark and to hear about future research opportunities.

Challenges of current and future therapies for cystic fibrosis

Study type: Observational

Status: No longer recruiting

  • study suitable for males and females
  • 18+
    years
  • Patients, parents & caregivers
  • Survey + phone interview

This study focuses on patients’ views on the new generation of treatments in development for CF, on medicines already available to treat the condition, and on their biggest challenges.

We have closed recruitment for this study, but please join to receive cystic fibrosis updates from Raremark and to hear about future research opportunities.

Living with sickle cell survey

Study type: Observational

Status: No longer recruiting

  • study suitable for males and females
  • 18+
    years
  • 5 mins to complete
  • Online survey

This survey explores how sickle cell patients living in the UK are impacted by their condition.

We have closed recruitment for this study, but please join to receive sickle cell updates from Raremark and to hear about future research opportunities.

Informing future drug development

Become a community member to learn more about the disease you’re affected by, hear about ways to take part in research and to have your say in how new treatments are developed.

Find your community

Contacting Raremark

If you or someone close to you is affected by a rare disease and you would like to contact the Raremark community team, please email us at: hello@raremark.com.

If you are involved in rare disease research and you would like to know how Raremark can support your study, please email the new business team at business@raremark.com.