• Raremark Voices #1: Living with cystic fibrosis
    We welcome two members of the cystic fibrosis community to talk with us about what it's like living with cystic fibrosis

White papers

  • The emergence of the self-referring patient, October 2017
    Eight key influencers of success in the age of the empowered patient

    PDF 1.9mb

  • A new approach to shortening the diagnostic odyssey, May 2017
    Patient-powered medical education promises to address knowledge gaps in rare disease

    PDF 3.2mb

  • Tackling rare disease with big and small data, February 2017
    Why we need workable models for combining very large datasets with the very small

    PDF 3mb

  • Patient-led design: concept to reality, June 2016
    Think the doctor knows best? Think again

    PDF 241kb

Media kit

  • Raremark logo
    Raremark logo with strapline, green on white background

    Jpg 120kb

  • Raremark motif
    Minimal logo, green on white background

    Jpg 15kb

  • Our founder: Julie Walters
    Julie Walters: (Picture 1)

    Jpg 935kb

  • Our founder: Julie Walters
    Julie Walters: (Picture 2)

    Jpg 1mb

  • What does it feel like to live with a rare disease?

    Video 04:05

Community contact

For patients & families

T +44 (0)20 7034 3216

Partnering contact

Julie Walters

T +44 (0) 20 7034 3216

M +44 (0) 775 362 6967

Media contacts

Pete Chan

T +44 (0) 20 7034 3216

M +44 (0) 775 328 0299